Jillian Ondreyka is a Registered Dietitian Nutritionist (RDN) specializing in nutrition for hidradenitis suppurativa. She has been partnering with clients to achieve their nutrition goals since 2014. She works with people one on one virtually in the US and globally.

 

As a person with Hidradenitis Suppurativa (HS), she became interested in how food can help and started specializing in nutrition for HS in 2019. She graduated from the University of Michigan with a Master of Public Health in the program Health Behavior and Health Education and Eastern Michigan University with her Bachelor of Science in Dietetics. She also earned the Integrative and Functional Nutrition Certified Practitioner (IFNCP) credential and is a Certified LEAP Therapist (CLT). LEAP stands for Lifestyle Eating and Performance and is a patient-specific oligoantigenic diet based on the Leukocyte Activation Assay-Mediator Release Test (LAA-MRT®). Jillian began participating in dermatology research evaluating the effectiveness of the Lifestyle Eating and Performance (LEAP) program in improving outcomes in HS in 2022.

Hidradenitis & Me Support Group is a registered not-for-profit organization dedicated to promoting self-care, mental health, and raising awareness for individuals living with Hidradenitis Suppurativa (HS). We facilitate monthly support sessions, creating a safe environment for individuals with HS and their caregivers to share experiences, exchange care tips, and foster a sense of community.

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The International Association of Hidradenitis Suppurativa Network (IAHSN) is dedicated to providing the support individuals need to effectively manage their Hidradenitis Suppurativa (HS). We advocate for greater awareness, education, legislation, and wellness, while offering vital resources to improve the quality of life for those living with HS.

• IAHSN was founded in June 2012 to address the gap in medical care for HS patients, offering guidance and resources to both patients and caregivers in collaboration with primary care physicians and dermatologists.

• Since its inception, IAHSN has been committed to advocacy, education, and support. Our mission is to empower patients to better manage their condition and enhance their overall well-being, while also providing caregivers with the tools they need to offer effective care.

Hi, I’m Ashley Dalton! I’m a Hidradenitis Suppurativa (HS) patient advocate who is passionate about raising awareness, breaking stigma, and supporting others living with this condition. After facing my own HS journey, I started sharing my experiences to help others feel less alone and to empower patients to advocate for themselves.

 

I’m proud to be a part of HS Connect as a patient advocate, where I get to amplify patient stories, spread education, and build hope within the HS community. My goal is simple: to make sure every HS patient feels seen, heard, and supported.

HidraWear, is an innovative medical technology company based in Galway, Ireland. Founded by Suzanne Moloney, the company specializes in developing advanced wound care solutions for individuals suffering from Hidradenitis Suppurativa (HS).

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Suzanne Moloney, who has personally battled HS since her teenage years, was inspired to create a more effective wound management system after experiencing firsthand the limitations of traditional dressings. Transitioning from her career as a professional baker, she dedicated herself to addressing the unmet needs of HS patients. This led to the development of HidraWear, a patented range of adhesive-free dressings designed to conform to the body's contours, allowing for greater mobility and comfort without skin irritation.

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Through innovative solutions, Suzanne and the HidraWear team aim to improve the quality of life for those affected by HS, providing them with practical and comfortable wound care options.

As a leading voice in the HS community, we empower individuals with Hidradenitis Suppurativa (HS) and inflammatory diseases to reclaim their lives. We provide holistic resources and personalized care practices that address the physical, emotional, spiritual, and mental challenges of HS. By creating a safe space for sharing stories, fostering connection, and building community, we help individuals embrace life beyond their diagnosis. We aim to ensure that people with HS are seen, supported, and empowered to live confidently and without shame. With access to personalized care, no one faces HS alone, and everyone can thrive with dignity.

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We envision a world where people with HS and inflammatory diseases are seen, supported, and empowered to live confidently and without shame. With access to personalized care and resources, no one faces HS alone, and everyone can thrive with dignity and pride. 
 

TBD

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